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As part of the OBVIA's International Symposium on Digital Health Data, held on November 17 and 18, 2022 in Montreal, Nathalie De Marcellis-Warin, full professor at Polytechnique Montreal and CIRANO Fellow, and Christophe Mondin, Research Professional at CIRANO, presented the results* of the Barometer on the Acceptability of Health Data Sharing, in collaboration with OBVIA.
53% say they "never" or "very rarely" share their personal data, but 83% have a personal profile on one or more social networks and 80% of these have a way to identify themselves on their profile (photo, full name, telephone, etc.)
9 out of 10 respondents perceive as very strong the benefits that would impact issues related to health services. 53% of Quebecers consider the risk "possible" or "certain" that health data will be disclosed in the public space, mainly in relation to a security breach problem.
75% of Quebecers "trust" or "completely trust" health professionals (59% for university researchers), while only 18% of the population trust GAFAMs.
About the CIRANO - OBVIA Health Data Barometer
Data analysis of a survey conducted with a sample of 1005 respondents representative of the Quebec population to take the pulse of the Quebec population to understand their data sharing and digital usage habits and to analyze their perceptions of data sharing and AI usage in health. Descriptive statistics analyses are completed by significance tests on socio-demographic variables.
Christophe Mondin and Nathalie de Marcellis-Warin